Samantha BellefeuilleOttawa Hospital Research Institute
In 2019, Samantha completed the Family Engagement in Research Certificate at McMaster University and ever since has been involved in research as a family partner. During the course, she completed infographics, presentations, research projects and more. Samantha was asked to join the SIBYAC group (Sibling Youth Advisory Council), where she attended conferences, spoke on panels, helped with research and learned a lot more about the research perspective while sharing her perspective as a Sibling/Family Partner from her experiences with her brother. Her younger brother, who is seventeen, has a rare form of epilepsy called CDKL5. Being a large part of his caregiving as well as attending multiple appointments gave her a lot of insight into a new side of pediatric care and especially the transition from pediatrics to adult healthcare. In 2020, Samantha joined the CHEO Partner in Research program where she helps out as a Family Leader providing feedback on a variety of research projects. In September 2020, she joined the CAMI Chatbot project from the University of Alberta where she had to research valuable resources in her area to be used within the Chatbot Project.