Panel Discussion, “Complexity of Ethics in KT Science and Practice”
Professor Nicolas Fernandez, Patient Partner, Université de Montréal
Jenny Leese, University of British Columbia
Claire Ludwig, Patient Partner, University of Ottawa
Samantha Bellefeuille, Patient Partner
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Meeting ID: 977 9422 7541
Claire LudwigUniversity of Ottawa
Claire Ludwig is a PhD candidate at the School of Nursing, University of Ottawa. Her doctoral work is focused on patient engagement in research, specifically engaging frail and/or seriously ill patients as knowledge users. Her other research interests examine how patients and nurses negotiate the process of triage and self-management in cancer symptom management. Claire is a senior health care leader involved in the development, implementation and evaluation of large-scale programs aimed at improving patient and caregiver outcomes. Claire is also a patient with a cancer, currently in remission. She has served as a knowledge user on research projects as a healthcare administrator and as a patient advisor in the acute treatment and maintenance phases of her illness.
Jenny LeeseUniversity of British Columbia
Jenny Leese is a PhD candidate in Rehabilitation Sciences at the University of British Columbia and a research trainee at Arthritis Research Canada. Her qualitative research in patient-oriented knowledge translation uses an ethics lens to develop e-health interventions with persons living with arthritis. Her work is supported by a Canadian Institutes for Research Doctoral Research Award.
Professor Nicolas FernandezUniversité de Montreal
Nicolas Fernandez is Associate Professor at the Faculty of Medicine at the Université de Montreal. Recipient of a transplanted kidney in 2008, Nicolas learned to manage his dialysis treatments, both peritoneal and hemodialysis, over a period of eight years. This life transforming experience, combined with his academic career in educational research and teaching, allowed Nicolas to develop unique insights into self-management of chronic illness. His doctoral thesis was completed in large part during treatment sessions in the dialysis unit of his local hospital. Nicolas contributes regularly to initiatives aimed at integrating patient perspective into training of health professionals, health research and Quality Improvement in clinical settings.
Samantha BellefeuilleOttawa Hospital Research Institute
In 2019, Samantha completed the Family Engagement in Research Certificate at McMaster University and ever since has been involved in research as a family partner. During the course, she completed infographics, presentations, research projects and more. Samantha was asked to join the SIBYAC group (Sibling Youth Advisory Council), where she attended conferences, spoke on panels, helped with research and learned a lot more about the research perspective while sharing her perspective as a Sibling/Family Partner from her experiences with her brother. Her younger brother, who is seventeen, has a rare form of epilepsy called CDKL5. Being a large part of his caregiving as well as attending multiple appointments gave her a lot of insight into a new side of pediatric care and especially the transition from pediatrics to adult healthcare. In 2020, Samantha joined the CHEO Partner in Research program where she helps out as a Family Leader providing feedback on a variety of research projects. In September 2020, she joined the CAMI Chatbot project from the University of Alberta where she had to research valuable resources in her area to be used within the Chatbot Project.